Just a short note to post times for Edna's rosary on Sunday the 27Th at 7:00 pm and funeral Monday the 28Th at 10:00 am. The services will be at St. Patricks Catholic Church in Sidney. Some of our bloggers are family and might want to know. Hope the weather is conducive to travel.
Mary
Angkor Wat
Temples of Angkor Wat
Tuesday, December 22, 2009
A Sad Day
Yesterday we learned that Brian's mom passed away at 3:48 pm. Brian had just got all the arrangements made to finally transport her to Sidney hospital today. James, Brian's brother had seen her yesterday and she wasn't feeling as well as the weekend. Edna just slipped away quietly and quickly according to her doctor. I just wish we could have gotten her home like she wished before this happened, but God has other plans sometimes.
Edna has been like a mother to me, since my mom passed away in 1995. She has been a fighter and a rock to her family, even with numerous health concerns throughout her life. We had a special relationship that I will cherish for ever. It isn't every daughter-in-law that can be accepted and loved by her mother-in-law like the way Edna did. I will miss her tremendously!
Brian and I will travel to Sidney as soon as the funeral director can get her back home from Denver so we can help make arrangements for her funeral. The funeral will not be until after Christmas, but I will post the time when it is decided.
May you all enjoy your families' gatherings this holiday season! Our family will certainly be reminiscing Edna's attributes at ours.
Mary
Edna has been like a mother to me, since my mom passed away in 1995. She has been a fighter and a rock to her family, even with numerous health concerns throughout her life. We had a special relationship that I will cherish for ever. It isn't every daughter-in-law that can be accepted and loved by her mother-in-law like the way Edna did. I will miss her tremendously!
Brian and I will travel to Sidney as soon as the funeral director can get her back home from Denver so we can help make arrangements for her funeral. The funeral will not be until after Christmas, but I will post the time when it is decided.
May you all enjoy your families' gatherings this holiday season! Our family will certainly be reminiscing Edna's attributes at ours.
Mary
Saturday, December 19, 2009
Christmas Greetings!
Sorry, that I haven't posted any new information sooner. Our family has had another health emergency since I last posted. Brian's 85 year old mother who lives in an assisted living facility in Sidney, NE went to Denver to get a pacemaker implanted. She crashed and ended up having renal failure in which she needed temporary dialysis. In the meantime, they have found a mass on her ovary but she refuses to have more testing to determine exactly what it is. I really don't blame her, she has been through enough! All she wants to do is get back to Sidney. The medical staff feels she is safe enough to go to the Sidney hospital, but hospital won't take her. I have never heard of an acute hospital refusing to take a patient. Its a new one on me. She is entitled to her medicare coverage and Brian is still trying to negotiate her acceptance . The doctors in Aurora have already signed her release papers.
It seems God gives us only what we can handle. Brian is doing a great job trying to coordinate her care along with his siblings. He is feeling better after last chemo session. We are very hopeful that next trip to Zion will truly be his last time for a while. That his cancer has disappeared and we all can move on with our life endeavours.
Brian and I are wishing all a Merry Christmas and Happy New Year! We thank all of you for your support and prayers which have made Brian's healing process so successful.
Love,
Mary and Brian
It seems God gives us only what we can handle. Brian is doing a great job trying to coordinate her care along with his siblings. He is feeling better after last chemo session. We are very hopeful that next trip to Zion will truly be his last time for a while. That his cancer has disappeared and we all can move on with our life endeavours.
Brian and I are wishing all a Merry Christmas and Happy New Year! We thank all of you for your support and prayers which have made Brian's healing process so successful.
Love,
Mary and Brian
Monday, December 7, 2009
Home Again
Brian and I got home Sunday night after being delayed in Denver overnight. Saturday we missed our connection from Denver to Scottsbluff due to boarding issues in Milwaukee. We had only a 30 minute window to make the connection. Frontier put us up in the Renaissance Hotel with food and future travel vouchers. We made it to the hotel in time to watch Nebraska get beat by one point. Brian slept most of time until we continued back to the airport on Sunday. We were delayed again by snow and had to wait couple hours to get on the Scottsbluff flight. But we made it safely!
Brian had surgery on Thursday to get his central line removed. He developed an infection in it and it had to be removed. Fortunately the infection was still localized and they were able to give him IV and oral antibiotics. He did have to be put under general anesthesia, then get Chemo later that day in a peripheral IV site in his arm.
Brian saw Dr. Vashi again. He told Brian he will do an other EGD scope of the esophagus and the colonoscopy at the next visit so Brian will only have to be sedated once. Next time Brian will also get another CT and possible PET scan to see how his treatment has progressed. We are hopeful he will not need any more Chemo! Our next trip to Zion will be on January 3rd. Brian and I will be flying out of Scottsbluff to Denver and then to Milwaukee again due to lower cost. We will fly home again on January 6Th.
Brian was given enough steroids to get him home and now he is feeling the effects of his chemo. He is dizzy, shaky, and very fatigued. He has trouble with his vision too. He will get better.
The holiday season is upon us and this is the first year Brian hasn't had to deal with the Postal rush in 31 years. I am thankful that he does not have to endure those postal stresses so he can concentrate on healing himself. I am also thankful for all the support and prayers! May your Christmas times be happy.
Brian had surgery on Thursday to get his central line removed. He developed an infection in it and it had to be removed. Fortunately the infection was still localized and they were able to give him IV and oral antibiotics. He did have to be put under general anesthesia, then get Chemo later that day in a peripheral IV site in his arm.
Brian saw Dr. Vashi again. He told Brian he will do an other EGD scope of the esophagus and the colonoscopy at the next visit so Brian will only have to be sedated once. Next time Brian will also get another CT and possible PET scan to see how his treatment has progressed. We are hopeful he will not need any more Chemo! Our next trip to Zion will be on January 3rd. Brian and I will be flying out of Scottsbluff to Denver and then to Milwaukee again due to lower cost. We will fly home again on January 6Th.
Brian was given enough steroids to get him home and now he is feeling the effects of his chemo. He is dizzy, shaky, and very fatigued. He has trouble with his vision too. He will get better.
The holiday season is upon us and this is the first year Brian hasn't had to deal with the Postal rush in 31 years. I am thankful that he does not have to endure those postal stresses so he can concentrate on healing himself. I am also thankful for all the support and prayers! May your Christmas times be happy.
Tuesday, December 1, 2009
Going to Zion
After a wonderful, loving Thanksgiving weekend; Mary and I are packing our bags for the trip to CTCA. Of course, I am starting to overcome the fatigue etc. from the last treatment and feel well this week. We will fly into Milwaukee tomorrow, I'll be watching for the king of beers as we touch down. Even though I haven't drank beer for 14 years, I still love beer; but it hates me.
Watching the fire on a cold night warms the whole person. It is getting cold enough now to qualify for winter here on the plains. With the Christmas season coming, I'm fighting off the bah-hum bug feeling. It hits me when I think of the pandemonium hitting the post office this time of year. OIC Ken reminds me that it may be different for me this year.
Wishing you and yours the best of times this holiday time of year!
Just send some thoughts and prayers our way as Mary and I press on. The energy you are sharing can not be measured or quantified, but its medicine is working. As cancer survivors, we must keep up the good fight and stand hopeful as the future is unfolding.
BRIAN
12/01/2009
Watching the fire on a cold night warms the whole person. It is getting cold enough now to qualify for winter here on the plains. With the Christmas season coming, I'm fighting off the bah-hum bug feeling. It hits me when I think of the pandemonium hitting the post office this time of year. OIC Ken reminds me that it may be different for me this year.
Wishing you and yours the best of times this holiday time of year!
Just send some thoughts and prayers our way as Mary and I press on. The energy you are sharing can not be measured or quantified, but its medicine is working. As cancer survivors, we must keep up the good fight and stand hopeful as the future is unfolding.
BRIAN
12/01/2009
Friday, November 20, 2009
10 Days After
Greetings to all!
Brian is finally feeling better. He still gets pretty tired and sleeps a lot. However, he is able to carry on a conversation, take a walk and piddle around the house. Its been hard for him not to have his horses around to keep him company.
Next week is Thanksgiving and we are planning on having the family here. Brian and I have much to be thankful for. For having such great support from our family and friends. For having Brian's tumor disappear and being able to travel to one of the best cancer treatment centers in America for follow up care. God provides for us in many different ways.
Our next trip to CTCA will be a little different. We will be flying out of Scottsbluff to Denver on Dec. 2nd and then from Denver to Milwaukee, WI. Milwaukee is about the same distance to Zion that Chicago is. Brian has appointments on Dec. 3rd and 4th and then we plan on flying back on Sat. Dec. 5th. The cost is about $300 cheaper for me and our carrier out of Denver will be Frontier.
Everyone please have a safe and wonderful holiday!
Brian is finally feeling better. He still gets pretty tired and sleeps a lot. However, he is able to carry on a conversation, take a walk and piddle around the house. Its been hard for him not to have his horses around to keep him company.
Next week is Thanksgiving and we are planning on having the family here. Brian and I have much to be thankful for. For having such great support from our family and friends. For having Brian's tumor disappear and being able to travel to one of the best cancer treatment centers in America for follow up care. God provides for us in many different ways.
Our next trip to CTCA will be a little different. We will be flying out of Scottsbluff to Denver on Dec. 2nd and then from Denver to Milwaukee, WI. Milwaukee is about the same distance to Zion that Chicago is. Brian has appointments on Dec. 3rd and 4th and then we plan on flying back on Sat. Dec. 5th. The cost is about $300 cheaper for me and our carrier out of Denver will be Frontier.
Everyone please have a safe and wonderful holiday!
Wednesday, November 11, 2009
Chemo Session II
Greetings to all!
Got home safely yesterday from CTCA. No travel difficulties this time thank goodness. Brian and I enjoyed are visit with our friends in Lisle IL. They were kind enough to pick us up at O'Hara Sat. and then take us to Zion on Sunday afternoon.
Brian saw his oncologist and naturalist doctors at CTCA and everything looks great. He has gained almost 20# back and that is good news! Brian had his second chemo session and needs one more before they will get next follow up CT and or P.E.T. scans. He has an appointment with Dr. Vashi to get an colonoscopy next visit. Just want to make sure both ends are working properly, ha!
Brian is having some side effects from chemo such as, hiccups, stomach indigestion, tremors, and fatigue. The steroids and anti nausea medications usually last until we make it home so travel isn't so difficult for him.
I will be traveling with Brian from now on. He seems to need my navigational skills. Sometimes he doesn't always get the information right. It is very overwhelming to keep things straight when you are being treated by numerous people. The next planned date we will return to CTCA is Wednesday Dec. 2Nd and return the Saturday the 5Th. His oncologist wants him to stay on a 3 week schedule.
We will keep you posted.
Love to all!
Mary
Got home safely yesterday from CTCA. No travel difficulties this time thank goodness. Brian and I enjoyed are visit with our friends in Lisle IL. They were kind enough to pick us up at O'Hara Sat. and then take us to Zion on Sunday afternoon.
Brian saw his oncologist and naturalist doctors at CTCA and everything looks great. He has gained almost 20# back and that is good news! Brian had his second chemo session and needs one more before they will get next follow up CT and or P.E.T. scans. He has an appointment with Dr. Vashi to get an colonoscopy next visit. Just want to make sure both ends are working properly, ha!
Brian is having some side effects from chemo such as, hiccups, stomach indigestion, tremors, and fatigue. The steroids and anti nausea medications usually last until we make it home so travel isn't so difficult for him.
I will be traveling with Brian from now on. He seems to need my navigational skills. Sometimes he doesn't always get the information right. It is very overwhelming to keep things straight when you are being treated by numerous people. The next planned date we will return to CTCA is Wednesday Dec. 2Nd and return the Saturday the 5Th. His oncologist wants him to stay on a 3 week schedule.
We will keep you posted.
Love to all!
Mary
Friday, October 30, 2009
The Halloween Blizzard
It has been Mother Nature's week. Brian was unable to travel to CTCA because of the blizzard that roared through the western panhandle of Nebraska starting Wednesday and continuing on through early this morning. We had 12-16 inches of wet, wet snow and the visibility was nil! I left work early on Wednesday and haven't been back.
New plans have been made, granting Mother Nature cooperates. This time Brian and I are going to fly out to CTCA on Sat. Nov. 7Th and return on Tuesday the 10Th. Our friends Bruce and Mary are going to pick us up at O'Hara Sat. so we can have another good visit. Then they are kind enough to take us to Zion the next day. It isn't every day we get to fly out their direction, though more now since doctoring at CTCA.
It looks more like Christmas instead of Halloween. Have a safe weekend while trick and treating!
Mary
New plans have been made, granting Mother Nature cooperates. This time Brian and I are going to fly out to CTCA on Sat. Nov. 7Th and return on Tuesday the 10Th. Our friends Bruce and Mary are going to pick us up at O'Hara Sat. so we can have another good visit. Then they are kind enough to take us to Zion the next day. It isn't every day we get to fly out their direction, though more now since doctoring at CTCA.
It looks more like Christmas instead of Halloween. Have a safe weekend while trick and treating!
Mary
Monday, October 26, 2009
10/26/09 Brian's notes
Should be titling this message HAIRLESS! Mary and I were up at the Pieper Red Angus sale this past weekend. Of which Jessamyn and her family were blessed with another successful fall sale. While at the sale, each time I tugged my mustache a pinch full of black hair came out just like it was harvest time. My scalp has been steadily thinning out for several weeks, and it was getting plucky too. So, Jessamyn gave me the military buzzcut and kind of like Elvis going to the Army; I'm off to finish the battle as the cancer fighter.
A close friend asked me today if I was writing any songs during this time. Sadly, I told her I had not picked up a guitar in 30 days. I should have responded that I have been keeping a journal of my success with lots of inspiration being recorded for future reflection. I could have said that my hands may have needed a rest, and that along with the glucosomine pills my arthritis has not been bothersome.
It is truly God's miracle that when we are feeling good, we forget whatever pain we may have gone through to heal. Of course, I'm lucky enough to be able to sleep a lot. My stress level has been nil; thanks to the wonderful sick leave program that the USPS career has provided. To be self employed, having to work and go through this would be a vexation.
As Mary wrote in the previous blog, I will be off to the CTCA on Wednesday, appointments on Thursday and return on Friday afternoon this week. A quick trip but necessary to stay on the prescribed schedule of chemotherapy each third week. After a rainy weekend, the sun is shining today so I will be out for my two mile walk on the prairie, my spirits are up and it is a great day to be alive. Wish you were here to go walking the walk with me.
Again, I can not begin to thank everyone for all of the prayers, chants, healing ceremonies, supportive thoughts and cards with kind words that you send our way each day. Most of all, thank you for the subtle, caring love you are sending to Mary and I during this journey.
A close friend asked me today if I was writing any songs during this time. Sadly, I told her I had not picked up a guitar in 30 days. I should have responded that I have been keeping a journal of my success with lots of inspiration being recorded for future reflection. I could have said that my hands may have needed a rest, and that along with the glucosomine pills my arthritis has not been bothersome.
It is truly God's miracle that when we are feeling good, we forget whatever pain we may have gone through to heal. Of course, I'm lucky enough to be able to sleep a lot. My stress level has been nil; thanks to the wonderful sick leave program that the USPS career has provided. To be self employed, having to work and go through this would be a vexation.
As Mary wrote in the previous blog, I will be off to the CTCA on Wednesday, appointments on Thursday and return on Friday afternoon this week. A quick trip but necessary to stay on the prescribed schedule of chemotherapy each third week. After a rainy weekend, the sun is shining today so I will be out for my two mile walk on the prairie, my spirits are up and it is a great day to be alive. Wish you were here to go walking the walk with me.
Again, I can not begin to thank everyone for all of the prayers, chants, healing ceremonies, supportive thoughts and cards with kind words that you send our way each day. Most of all, thank you for the subtle, caring love you are sending to Mary and I during this journey.
Saturday, October 17, 2009
Tubeless
Hi all!
Its the weekly update and the weather has improved! It is sunny out and breezy, but warmer. I have been back in the saddle at work, so I am catching up on a few things today.
Brian has finally gotten his intestinal tube removed on Wed. The tube was inserted in preparation for surgery and since that is not an option, he wasted no time in getting it out. It has been his bane from the get go. Brian was feeling better by the end of the week after severe fatigue and body aches. At least he could eat and not have much nausea. He gets his blood checked now every week for 16 weeks. His blood work was normal this week and we are thankful.
We have decided that Brian will go to CTCA on October 28TH solo because tickets for me are $900.00. Since there will be no tests, only chemo we decided I should go next time in November when they plan to do more testing.
Hope all of you have a good week!
Mary
Its the weekly update and the weather has improved! It is sunny out and breezy, but warmer. I have been back in the saddle at work, so I am catching up on a few things today.
Brian has finally gotten his intestinal tube removed on Wed. The tube was inserted in preparation for surgery and since that is not an option, he wasted no time in getting it out. It has been his bane from the get go. Brian was feeling better by the end of the week after severe fatigue and body aches. At least he could eat and not have much nausea. He gets his blood checked now every week for 16 weeks. His blood work was normal this week and we are thankful.
We have decided that Brian will go to CTCA on October 28TH solo because tickets for me are $900.00. Since there will be no tests, only chemo we decided I should go next time in November when they plan to do more testing.
Hope all of you have a good week!
Mary
Sunday, October 11, 2009
At Home
Greetings to all!
Made it to Scottsbluff around 12:00 midnight Friday. What a trip getting home. The plane from Los Angles that we were to board hit extreme turbulence and was cancelled to Denver. We had to wait for another plane to be found and it was smaller. So some unhappy people where left behind. It caused us to miss our plane connections, but they cancelled the flight to Alliance anyway due to snow. So we got on the plane to Scottsbluff after many delays and Paqui picked us up. We stayed overnight at her house, Rico was ecstatic to see us. We also got to see Zeyda the next morning. Got home to Alliance around 1:00 pm Saturday.
Brian was extremely fatigued yesterday and was not feeling well at all last night. He couldn't eat much, only wanted to sleep. He was achy all over and having some heart palpitations. This morning he is better, still very tired. He started on the naturalist's prescribed supplements and hopefully he will feel better. He already was snoozing with Rico in lap after breakfast.
I am trying to get all the mountains of laundry done and our stuff put away today. It is snowing and the visibility is about 1/4 mile. I can't hardly believe it! What happened to fall?
We will be flying back to CTCA for next round of chemo on October 28Th and then flying home again on the 30Th. Hope the weather cooperates.
Luv, Mary
Made it to Scottsbluff around 12:00 midnight Friday. What a trip getting home. The plane from Los Angles that we were to board hit extreme turbulence and was cancelled to Denver. We had to wait for another plane to be found and it was smaller. So some unhappy people where left behind. It caused us to miss our plane connections, but they cancelled the flight to Alliance anyway due to snow. So we got on the plane to Scottsbluff after many delays and Paqui picked us up. We stayed overnight at her house, Rico was ecstatic to see us. We also got to see Zeyda the next morning. Got home to Alliance around 1:00 pm Saturday.
Brian was extremely fatigued yesterday and was not feeling well at all last night. He couldn't eat much, only wanted to sleep. He was achy all over and having some heart palpitations. This morning he is better, still very tired. He started on the naturalist's prescribed supplements and hopefully he will feel better. He already was snoozing with Rico in lap after breakfast.
I am trying to get all the mountains of laundry done and our stuff put away today. It is snowing and the visibility is about 1/4 mile. I can't hardly believe it! What happened to fall?
We will be flying back to CTCA for next round of chemo on October 28Th and then flying home again on the 30Th. Hope the weather cooperates.
Luv, Mary
Wednesday, October 7, 2009
Getting new chemo regimen
Hi all!
Brian is getting a new chemo regimen starting tomorrow. He met with his new oncologist Dr. Neelam. She was very nice and restated plan of treatment. Surgery is out of the equation now and she is concerned with tiny nodule in right lower lung so wants to try two different chemo agents, Carboplatin and Docetaxel solution . He will receive these agents in one time dosing. It will cause his blood count to drop more than the other chemo and he will lose his hair. We just don't know how nauseated and sick he might get. It isn't supposed to be as bad as cystoplastin was with 5Fu and the radiation. He will come back to CTCA every 3-4 weeks for 3 more doses then he will get a CT scan to see if everything is clear, including nodule gone. Also, he will be getting a blood test done back home every week.
The good news today is that the pathology from biopsies of the esophagus taken during the esophagael scope were all negative for any cancerous cells, YEAH!! We will probably stay here tomorrow night and Friday to make sure Brian has tolerated treatment.
Will keep in touch!
Mary
Brian is getting a new chemo regimen starting tomorrow. He met with his new oncologist Dr. Neelam. She was very nice and restated plan of treatment. Surgery is out of the equation now and she is concerned with tiny nodule in right lower lung so wants to try two different chemo agents, Carboplatin and Docetaxel solution . He will receive these agents in one time dosing. It will cause his blood count to drop more than the other chemo and he will lose his hair. We just don't know how nauseated and sick he might get. It isn't supposed to be as bad as cystoplastin was with 5Fu and the radiation. He will come back to CTCA every 3-4 weeks for 3 more doses then he will get a CT scan to see if everything is clear, including nodule gone. Also, he will be getting a blood test done back home every week.
The good news today is that the pathology from biopsies of the esophagus taken during the esophagael scope were all negative for any cancerous cells, YEAH!! We will probably stay here tomorrow night and Friday to make sure Brian has tolerated treatment.
Will keep in touch!
Mary
Tuesday, October 6, 2009
Finally a plan
Hello to all!
We had the esophageal scope on Monday and got to see the surgeon today. The surgeon Dr. Brown was very nice and thorough with his assessment of Brian's current tests in comparison to tests prior to treatment.
The good news is that the tumor and affected lymph node on the hepatic ligament is gone. He continues to have Barrett's esophagus but otherwise his esophagus and stomach junction looks normal.
The surgeon stated that surgery would only prevent cancer from coming back in esophagus and since it was also found in the hepatic lymph node chances are favorable for it to spread to the liver. The doctor stated an esophagectomy is a very life changing surgery that would change Brian's life forever. He stated if the cancer was only located in the esophagus it would be a cure and the recommended form of treatment. Since it was already noted in node outside it wouldn't be considered a cure. The cancer could show up in liver or lung.
On the CT scan a small nodule was seen in the right lower lung. The PET scan didn't indicate any increase of metabolic activity in the chest, lungs, liver, or pelvis. Doctor didn't know what the nodule was because it was new, he thought it could be scar tissue.
The doctor stated he used to be aggressive with surgery but over time has determined to be more selective related to effects of surgery and recurrence of cancer showing up in the liver. The bottom line is he didn't recommend surgery for Brian, but recommended going to oncologist and receiving more chemo to try and prevent cancer from returning in esophagus and spreading to liver. Then having frequent scopes and scans to monitor for recurrence of cancer. So tomorrow we have an appointment with a Dr. Neelam an oncologist to see what and how long chemotherapy will be.
Both Brian and I had a wonderful massage today! He got his free and mine was only $20.00.
They have all sorts of activities here for patients and caregivers, not to mention the food is good.
L. Mary
We had the esophageal scope on Monday and got to see the surgeon today. The surgeon Dr. Brown was very nice and thorough with his assessment of Brian's current tests in comparison to tests prior to treatment.
The good news is that the tumor and affected lymph node on the hepatic ligament is gone. He continues to have Barrett's esophagus but otherwise his esophagus and stomach junction looks normal.
The surgeon stated that surgery would only prevent cancer from coming back in esophagus and since it was also found in the hepatic lymph node chances are favorable for it to spread to the liver. The doctor stated an esophagectomy is a very life changing surgery that would change Brian's life forever. He stated if the cancer was only located in the esophagus it would be a cure and the recommended form of treatment. Since it was already noted in node outside it wouldn't be considered a cure. The cancer could show up in liver or lung.
On the CT scan a small nodule was seen in the right lower lung. The PET scan didn't indicate any increase of metabolic activity in the chest, lungs, liver, or pelvis. Doctor didn't know what the nodule was because it was new, he thought it could be scar tissue.
The doctor stated he used to be aggressive with surgery but over time has determined to be more selective related to effects of surgery and recurrence of cancer showing up in the liver. The bottom line is he didn't recommend surgery for Brian, but recommended going to oncologist and receiving more chemo to try and prevent cancer from returning in esophagus and spreading to liver. Then having frequent scopes and scans to monitor for recurrence of cancer. So tomorrow we have an appointment with a Dr. Neelam an oncologist to see what and how long chemotherapy will be.
Both Brian and I had a wonderful massage today! He got his free and mine was only $20.00.
They have all sorts of activities here for patients and caregivers, not to mention the food is good.
L. Mary
Thursday, October 1, 2009
Whew what a whirlwind!
Hi to all!
What a day we had! We went to the newbie orientation, then ended up in a meditation session (which really did relax us). We ate lunch then saw the mind and body counselor, nutritionist, and then Dr. Pankaj Vashi an internal gastrointestinal doctor.
This doctor was great! He right away called our insurance company Blue Cross and Shield and got approval for the PET scan that we needed and couldn't get approval for in Scottsbluff, hallelujah! Brian is also scheduled for another esophageal scope on Monday morning. These tests will determine future treatment plan. What is so great is that it all happens in one locale where all information can be accessed by all the providers.
We see a surgeon on Wednesday and that is the last appointment we know of until tests and plan is formulated.
Dr. Vashi thought Brian looked pretty good for a 57 year old man.
Bye for now!
Mary
Wednesday, September 30, 2009
Second Day
Brian had some testing done today. A cardiogram and another CT scan. We took the morning easy at the hotel and took off for lunch at CTCA. We are real pleased about getting all tests and treatments under one roof. They really make this as stress free as possible, shuttling all of us to and fro.
I am getting a lot of reading done. We plan on seeing our friends Bruce and Mary this weekend by renting a car and driving to Lisle IL to visit their new home. Hopefully we will be able to do some laundry.
There is only one problem , we miss the animals. Jessamyn is taking care of Doc the horse; Marc and Paqui are taking care of Rico the dog and our neighbors the Huddles are taking care of the cats. We appreciate you all!!!
Until tomorrow!
Mary
I am getting a lot of reading done. We plan on seeing our friends Bruce and Mary this weekend by renting a car and driving to Lisle IL to visit their new home. Hopefully we will be able to do some laundry.
There is only one problem , we miss the animals. Jessamyn is taking care of Doc the horse; Marc and Paqui are taking care of Rico the dog and our neighbors the Huddles are taking care of the cats. We appreciate you all!!!
Until tomorrow!
Mary
Tuesday, September 29, 2009
We're Here
We made it!
Got to Illinois beach resort late last night due to having a plane delay related to the right engine not starting properly. We had to unload and reload in another 747 which delayed us over 2 hours. What is in important though, is we arrived safely but very tired about 12: 30 am.
Brian was supposed to be at the CTCA medical center by 8:00, but since we missed supper we stayed and had a good breakfast before we headed out on our new journey. We were checked in and saw our first doctor. He was quite a character and very to the point. He told us that Brian has an aggressive type of tumor. None of the other physicians we saw told us that. He also wants Brian to have another CT scan, due to the last one is over a month old. Also will maybe get another esophageal ultra sound. He sees a nutritionist and naturalist on Thursday. Friday he sees another doctor for a second opinion. He couldn't get in to see the surgeon until next Monday or Wednesday.
Everyone we have talked to has been so friendly and helpful. Other clients have similar stories about confusing diagnosis or not getting the positive personal attention desired. Many other clients state that their experience at CTCA has be wonderful. This facility at Mid Western CTCA is the original one built and the hub for all the others.
Brian and I took a walk on the beach of Lake Michigan and through the woods. The surf was up! It is beautiful here and strange to see so much water.
We will keep in touch,
Mary
Got to Illinois beach resort late last night due to having a plane delay related to the right engine not starting properly. We had to unload and reload in another 747 which delayed us over 2 hours. What is in important though, is we arrived safely but very tired about 12: 30 am.
Brian was supposed to be at the CTCA medical center by 8:00, but since we missed supper we stayed and had a good breakfast before we headed out on our new journey. We were checked in and saw our first doctor. He was quite a character and very to the point. He told us that Brian has an aggressive type of tumor. None of the other physicians we saw told us that. He also wants Brian to have another CT scan, due to the last one is over a month old. Also will maybe get another esophageal ultra sound. He sees a nutritionist and naturalist on Thursday. Friday he sees another doctor for a second opinion. He couldn't get in to see the surgeon until next Monday or Wednesday.
Everyone we have talked to has been so friendly and helpful. Other clients have similar stories about confusing diagnosis or not getting the positive personal attention desired. Many other clients state that their experience at CTCA has be wonderful. This facility at Mid Western CTCA is the original one built and the hub for all the others.
Brian and I took a walk on the beach of Lake Michigan and through the woods. The surf was up! It is beautiful here and strange to see so much water.
We will keep in touch,
Mary
Tuesday, September 22, 2009
New Plan
Hello all!
Some exciting news for us! After the news we received in Denver, I started to google the net for other treatment options. I came across Cancer Treatment Centers of America's (CTCA) website. Brian contacted them and immediately he and I felt a genuine feeling that they wanted to take his case on. Esophageal cancer is a difficult cancer to treat and is becoming more prevalent. They told Brian they only treat stage III cancers or more and aren't a research hospital. They treat cancer with the most current innovated treatments possible in a holistic manner; not only medically, but in a naturalistic, spiritual, and nutritional way.
CTCA has contacted our insurance company to make sure they will pay and made our travel plans to fly to the Midwestern facility in Zion, IL on Monday, September 28Th. We will be staying at the Illinois Beach Resort in Zion and will fly to O'Hara and then take a limo to Zion. Brian and I don't know how long we will be there for evaluation and treatment. CTCA didn't make any return plans as of yet. Zion is on the north shore of Lake Michigan.
This gives the family new hope that we can lick this cancer and have more quality years with our favorite music man! I will be keeping the lap top with me and posting updates as they come so all will know whats going on.
Mary
Some exciting news for us! After the news we received in Denver, I started to google the net for other treatment options. I came across Cancer Treatment Centers of America's (CTCA) website. Brian contacted them and immediately he and I felt a genuine feeling that they wanted to take his case on. Esophageal cancer is a difficult cancer to treat and is becoming more prevalent. They told Brian they only treat stage III cancers or more and aren't a research hospital. They treat cancer with the most current innovated treatments possible in a holistic manner; not only medically, but in a naturalistic, spiritual, and nutritional way.
CTCA has contacted our insurance company to make sure they will pay and made our travel plans to fly to the Midwestern facility in Zion, IL on Monday, September 28Th. We will be staying at the Illinois Beach Resort in Zion and will fly to O'Hara and then take a limo to Zion. Brian and I don't know how long we will be there for evaluation and treatment. CTCA didn't make any return plans as of yet. Zion is on the north shore of Lake Michigan.
This gives the family new hope that we can lick this cancer and have more quality years with our favorite music man! I will be keeping the lap top with me and posting updates as they come so all will know whats going on.
Mary
Tuesday, September 15, 2009
Great Decisions
Greetings to all!
We are here in Estes Park contemplating Brian's future. As you know he had an appointment with his onocologist in Denver today. He gave him 4-options: 1 no surgery, scan every three months and chemo if necessary; 2-surgery, and possible have cancer spread anyway with very dangerous procedure and risk of death followed by more chemo; 3-do nothing and possibly have 2-3 years to live; 4- have endoscope with ultra sound to see if nodes are still involved which isn't necessary if going to do surgery. The onocologist got us in to see the surgeon before we left Denver and his prognosis has gotten worse related to lymph node involvement. He said that the surgery now will only increase Brian's chance of survival by 5-10%. It is a difficult decision for Brian to make. I know it will be difficult no matter what he decides, but the family will support what ever decision he makes.
Your continue prayers are appreciated and we will let you all know what decision Brian makes.
Mary
We are here in Estes Park contemplating Brian's future. As you know he had an appointment with his onocologist in Denver today. He gave him 4-options: 1 no surgery, scan every three months and chemo if necessary; 2-surgery, and possible have cancer spread anyway with very dangerous procedure and risk of death followed by more chemo; 3-do nothing and possibly have 2-3 years to live; 4- have endoscope with ultra sound to see if nodes are still involved which isn't necessary if going to do surgery. The onocologist got us in to see the surgeon before we left Denver and his prognosis has gotten worse related to lymph node involvement. He said that the surgery now will only increase Brian's chance of survival by 5-10%. It is a difficult decision for Brian to make. I know it will be difficult no matter what he decides, but the family will support what ever decision he makes.
Your continue prayers are appreciated and we will let you all know what decision Brian makes.
Mary
Wednesday, September 9, 2009
09/09/09 Brian comments 2 blog
Much love to you all, at times it is overwhelming; with all of the positive energy coming this way. It is just taking a lot of time to work through all of the issues surrounding my condition. To look back on summer slipping away gets me thinking. Through the years I have wondered when life would slow down for me. Hey now, slow motion is the only way that I'm operating it seems. Anyway, I wish I could give you all a slow hug right now.
I have been trying to walk/hike a couple of miles every day or so. Some days it doesn't work so well and I nap whenever I feel like it. I am getting stronger but not able to put any weight back on. Guess I'm destined to be one of the people who actually is at the recommended poundage, (for now at least!). The food intake has been a lot better with the excitement of eating all types of sandwiches. It was three months without them, you know.
I have been trying to walk/hike a couple of miles every day or so. Some days it doesn't work so well and I nap whenever I feel like it. I am getting stronger but not able to put any weight back on. Guess I'm destined to be one of the people who actually is at the recommended poundage, (for now at least!). The food intake has been a lot better with the excitement of eating all types of sandwiches. It was three months without them, you know.
Saturday, September 5, 2009
Labor Day Weekend News Flash
Greetings from Buffalo, WY!
Brian and I are doing the music and mini vacation gig here in Buffalo, WY. The band is playing two nights at The White Buffalo. Brian has been keeping most music gigs, but traveling in the car seven hours wore him out.
Brian's doctor in Scottsbluff called and his CAT scan results look favorable. His tumor has shrank, lungs look good, but had some small cysts on liver. The doctor isn't too concerned about them I guess, could be aftermath from radiation and chemo therapies.
Brian has his appointment on Tuesday the 15Th with his oncologist in Denver. Will discuss options and determine a plan. He has been trying to wean himself off the Fentanyl patches which has been very difficult. Be aware, that if you start them they are very hard to get off. Brian has had some really problematic symptoms drying to decrease the dose.
Happy Labor Day to all and safe journeys if you are out on the road!
Brian and I are doing the music and mini vacation gig here in Buffalo, WY. The band is playing two nights at The White Buffalo. Brian has been keeping most music gigs, but traveling in the car seven hours wore him out.
Brian's doctor in Scottsbluff called and his CAT scan results look favorable. His tumor has shrank, lungs look good, but had some small cysts on liver. The doctor isn't too concerned about them I guess, could be aftermath from radiation and chemo therapies.
Brian has his appointment on Tuesday the 15Th with his oncologist in Denver. Will discuss options and determine a plan. He has been trying to wean himself off the Fentanyl patches which has been very difficult. Be aware, that if you start them they are very hard to get off. Brian has had some really problematic symptoms drying to decrease the dose.
Happy Labor Day to all and safe journeys if you are out on the road!
Saturday, August 29, 2009
The Insurance God Speaks
We just want to let you all know how helpless one feels when it is up to an insurance company to determine what is the best care for you. Federal Blue Cross and Shield has determined that Brian does not need another P.E.T. scan or esophageal ultra sound to determine if the cancer has spread and if surgery would be the best option. They would rather have Brian go through this very complicated surgery and therefore take a chance that it would be for nothing if the cancer has already spread. WE DON'T GET IT! They would rather NOT pay for a few thousand dollar test, but pay for a several thousand dollar surgery that might not be needed, not to mention the physical and emotion toll it would put Brian through.
So our doctors are recommending that Brian have another CAT scan instead Tuesday. Then we will take the results to Denver to our oncologist there and he will consult with the surgeons in Denver to try and decide the best course of action: surgery or more chemo or radiation. Let me tell you the only cure will be surgery, so hopefully Brian will be a candidate for surgery. The first CAT scan hardly showed the tumor so don't know what will be seen this time. This is all very frustrating to say the least!
The good news is that Brian got on his horse Doc; it is the first time since Memorial Day weekend. That certainly made his day and I am glad he is feeling well enough to ride.
Mary
So our doctors are recommending that Brian have another CAT scan instead Tuesday. Then we will take the results to Denver to our oncologist there and he will consult with the surgeons in Denver to try and decide the best course of action: surgery or more chemo or radiation. Let me tell you the only cure will be surgery, so hopefully Brian will be a candidate for surgery. The first CAT scan hardly showed the tumor so don't know what will be seen this time. This is all very frustrating to say the least!
The good news is that Brian got on his horse Doc; it is the first time since Memorial Day weekend. That certainly made his day and I am glad he is feeling well enough to ride.
Mary
Wednesday, August 26, 2009
Bumps In The Road
Here its another week and we still have not heard if our insurance company will pay for the P.E.T. scan. Brian has developed a severe rash to the adhesive from the tape we were using to protect his IV site and feeding tube. I have been greasing him and swaddling him like a mummy to his dismay. He also has bumps from the Fentanyl the doc thinks, so waiting to hear if there will be a change in the pain medicine.
Brian sleeps alot, but that is good to rejuvenate and heal. I been working and trying to keep up with home and hearth. Brian is helping more when he feels good.
Saw the grand kids last weekend and took them on a short trip to Laramie Peak to visit our friend Paul's place. Brain has been wanting to go to the mountains all summer, but hasn't felt up to it before. Paqui came with us with baby Zeyda. Taylen and Jarret hiked with Paul and swam in Horseshoe Creek swimming hole. It was fun! It did wear Brian out, though.
Thank you all for the comments and good wishes. We love you all!
Mary
Brian sleeps alot, but that is good to rejuvenate and heal. I been working and trying to keep up with home and hearth. Brian is helping more when he feels good.
Saw the grand kids last weekend and took them on a short trip to Laramie Peak to visit our friend Paul's place. Brain has been wanting to go to the mountains all summer, but hasn't felt up to it before. Paqui came with us with baby Zeyda. Taylen and Jarret hiked with Paul and swam in Horseshoe Creek swimming hole. It was fun! It did wear Brian out, though.
Thank you all for the comments and good wishes. We love you all!
Mary
Thursday, August 20, 2009
Coasting
Greetings to all!
Brian's pain issues are finally under control. He is on a stronger pain patch and quit taking the Vicodin. He is more himself, but still gets tired easily. He was suppose to have another P.E.T. scan yesterday but our insurance rejected payment for it. They felt it was not medically necessary to have another one done. We are letting the docs battle it out. Hopefully we will get to have another test to insure the cancer hasn't spread and facilitate the road to surgery.
Brian and I are walking to help get his strength back. He is eating better, however slow, but unable to gain much weight. At least he is maintaining and not loosing any more. He is wearing the size jeans he wore in high school.
We will keep in touch, had some trouble with our Internet service but is working now.
Mary
Brian's pain issues are finally under control. He is on a stronger pain patch and quit taking the Vicodin. He is more himself, but still gets tired easily. He was suppose to have another P.E.T. scan yesterday but our insurance rejected payment for it. They felt it was not medically necessary to have another one done. We are letting the docs battle it out. Hopefully we will get to have another test to insure the cancer hasn't spread and facilitate the road to surgery.
Brian and I are walking to help get his strength back. He is eating better, however slow, but unable to gain much weight. At least he is maintaining and not loosing any more. He is wearing the size jeans he wore in high school.
We will keep in touch, had some trouble with our Internet service but is working now.
Mary
Friday, August 7, 2009
Howdy to all!
Brian is now three weeks out from last radiation treatment and is suffering from esophageal spasms and pain. The oral pain medication Vicodin wasn't working well. His radiologist ordered Fentanyl transdermal patches to use. He was started on a low dose. The doctor stated I could increase it to two if necessary and I did this morning. Brian had a rough day yesterday, could hardly eat or to anything but sleep. Today he is much better and joking with me, he is like his old self. It brings tears of relief to me...
I hope he will have less pain soon. I imagine his nerve endings are waking up after being radiated twenty eight days. Thanks again for every one's prayers and support!
Mary
Brian is now three weeks out from last radiation treatment and is suffering from esophageal spasms and pain. The oral pain medication Vicodin wasn't working well. His radiologist ordered Fentanyl transdermal patches to use. He was started on a low dose. The doctor stated I could increase it to two if necessary and I did this morning. Brian had a rough day yesterday, could hardly eat or to anything but sleep. Today he is much better and joking with me, he is like his old self. It brings tears of relief to me...
I hope he will have less pain soon. I imagine his nerve endings are waking up after being radiated twenty eight days. Thanks again for every one's prayers and support!
Mary
Thursday, July 30, 2009
Friday July 30
First of all, many thanks for all the calls and concerns since the last blog entry. Each time I go to town to do a few things, the question is asked when I will be back to work. It is clear to me that my physical and mental fitness is not even close to being prepared to meet that challenge.
My food intake continues to improve, but am down to a weight of 172 pounds. Some folks in the valley do not recognize me now. I had to buy some jeans that are the same size that I wore in high school 39 years ago. When I was in SCB the other day I bought some 50 lb. feed sacks and could hardly lift them. That being said, I have a lot of recuperating to do to get my strength back. My gray gelding, Doc stares at me each day wondering what the heck is going on, as I haven't thrown a leg over him since the end of May. Luckily, our 2 year old bay gelding (Tiger Tom) has been at the trainer since June 5.
The rad/chemo treatments have held me back longer than I expected. The effects are starting to subside, but I have still been sleeping 12 hours a day. As you can see, I'm not able to accomplish much else with that regimen. I keep tearing the stitches out on the feeding tube, causing it to work its way out. This entails a trip to the doc to get it secured. We try to keep it thoroughly taped but I'm just too active. I have been taking vicodin for pain through out this process, but am weaning myself off of it now due to its side effects. Some of those side effects are requiring other pills to relieve them. The vicodin was effective for quite a while in easing the swallowing difficulties but is not worth the other issues. The final radiation treatments were intensified and more localized in the end, causing my esophagus/chest to be quite swelled and painful. It's like I have poker chip stuck down there, making it hard to get much food through. My neighbor said well its a lucky chip for you and will cash out soon. So, I am now trying a more holistic approach mixing some home remedies with a little faith.
I feel like a sad sack entering the medical stuff, but am very honored to be loved by you all and that you truly care about me as I continue this journey through the clearings and thickets ahead.
I am catching up on my reading, however. The home library is filled with books that I read about a third of the way, having got sidetracked with other commitments. One book that I finally finished was Aunt Doris' book "Destination Denver City". That was such an exciting time in regional history and her book sure described it well. As a pony express re-rider, I find it interesting to read about that time period. Times are different now, and it makes my personal struggle seem like less of a battle than what the settlers and Indians went through.
Fortunately, it has been summer and our beautiful property is the greenest we have seen it. My deck chairs have been getting well used. If I need to change the view; I just switch chairs or go to the other side of the house, as we have a deck on each side. While on our walk yesterday, we noticed that some of the prairie grass spears were over 5 feet tall. The sandhills are wonderful this year; just add a little rain water and it really responds. All this has kept my spirits lifted.
My food intake continues to improve, but am down to a weight of 172 pounds. Some folks in the valley do not recognize me now. I had to buy some jeans that are the same size that I wore in high school 39 years ago. When I was in SCB the other day I bought some 50 lb. feed sacks and could hardly lift them. That being said, I have a lot of recuperating to do to get my strength back. My gray gelding, Doc stares at me each day wondering what the heck is going on, as I haven't thrown a leg over him since the end of May. Luckily, our 2 year old bay gelding (Tiger Tom) has been at the trainer since June 5.
The rad/chemo treatments have held me back longer than I expected. The effects are starting to subside, but I have still been sleeping 12 hours a day. As you can see, I'm not able to accomplish much else with that regimen. I keep tearing the stitches out on the feeding tube, causing it to work its way out. This entails a trip to the doc to get it secured. We try to keep it thoroughly taped but I'm just too active. I have been taking vicodin for pain through out this process, but am weaning myself off of it now due to its side effects. Some of those side effects are requiring other pills to relieve them. The vicodin was effective for quite a while in easing the swallowing difficulties but is not worth the other issues. The final radiation treatments were intensified and more localized in the end, causing my esophagus/chest to be quite swelled and painful. It's like I have poker chip stuck down there, making it hard to get much food through. My neighbor said well its a lucky chip for you and will cash out soon. So, I am now trying a more holistic approach mixing some home remedies with a little faith.
I feel like a sad sack entering the medical stuff, but am very honored to be loved by you all and that you truly care about me as I continue this journey through the clearings and thickets ahead.
I am catching up on my reading, however. The home library is filled with books that I read about a third of the way, having got sidetracked with other commitments. One book that I finally finished was Aunt Doris' book "Destination Denver City". That was such an exciting time in regional history and her book sure described it well. As a pony express re-rider, I find it interesting to read about that time period. Times are different now, and it makes my personal struggle seem like less of a battle than what the settlers and Indians went through.
Fortunately, it has been summer and our beautiful property is the greenest we have seen it. My deck chairs have been getting well used. If I need to change the view; I just switch chairs or go to the other side of the house, as we have a deck on each side. While on our walk yesterday, we noticed that some of the prairie grass spears were over 5 feet tall. The sandhills are wonderful this year; just add a little rain water and it really responds. All this has kept my spirits lifted.
Thursday, July 16, 2009
Finished Finally
Chemo and radiation is finally finished, yeah! Yesterday we made the last trip to Scottsbluff for radiation. Brian received a celebration certificate and a cake for finishing. Only problem is he can't hardly eat it.
Now he will wait, heal and hopefully gain some weight back for 6-8 weeks. It will be his time to prepare for the next phase, surgery. The doctors want to retest with another P.E.T. scan and esophageal scope with ultra sound. If all has gone to plan he will meet with surgeons in Denver again and schedule the esophagectomy.
I will be going back to work today. Everyone has been so understanding and helpful. We really appreciate all the prayers and good wishes.
L. Mary
Now he will wait, heal and hopefully gain some weight back for 6-8 weeks. It will be his time to prepare for the next phase, surgery. The doctors want to retest with another P.E.T. scan and esophageal scope with ultra sound. If all has gone to plan he will meet with surgeons in Denver again and schedule the esophagectomy.
I will be going back to work today. Everyone has been so understanding and helpful. We really appreciate all the prayers and good wishes.
L. Mary
Saturday, July 11, 2009
Day After
Brian's last cycle of chemo was finished yesterday before we left for the road to Scottsbluff for his radiation treatment. He is still not eating very much, everything tastes bitter from the chemo. He is sleeping lots and lots.
He did play some last night at jam night with the Bluz Rockers in Alliance. Tonight he will have to play more. I am sure he will rise for the occasion, its music you know!
Monday I will still drive him to radiation and attend weekly doctor visit. We will hopefully discuss when appointments will be for follow up tests in Denver in 6-8 weeks. I am planning on going back to work again Tuesday. Brian feels he will be strong enough to drive himself to last 2 days of radiation on Tuesday and Wednesday.
The girls and grand kids are coming to visit Sunday to celebrate Brian's birthday belatedly. We should have a great time!
Mary
He did play some last night at jam night with the Bluz Rockers in Alliance. Tonight he will have to play more. I am sure he will rise for the occasion, its music you know!
Monday I will still drive him to radiation and attend weekly doctor visit. We will hopefully discuss when appointments will be for follow up tests in Denver in 6-8 weeks. I am planning on going back to work again Tuesday. Brian feels he will be strong enough to drive himself to last 2 days of radiation on Tuesday and Wednesday.
The girls and grand kids are coming to visit Sunday to celebrate Brian's birthday belatedly. We should have a great time!
Mary
Wednesday, July 8, 2009
Unable To Eat Again
The chemo has made Brian very nauseated and he is unable to eat or drink much for that matter. I started the feeding tube yesterday afternoon so he hopefully won't loose too much weight or get dehydrated like last time. Its been a rough night!
The poisonous substances that coarse through him and the knife like daily radiation treatments are taking their toll. Thank goodness it is almost finished. It is hard for me to see him suffer like this and not be able to help more.
Brian use to say how he always had his birthday during harvest as a young man working in the fields. I guess this birthday (Friday) he will be working on saving his life.
Mary
The poisonous substances that coarse through him and the knife like daily radiation treatments are taking their toll. Thank goodness it is almost finished. It is hard for me to see him suffer like this and not be able to help more.
Brian use to say how he always had his birthday during harvest as a young man working in the fields. I guess this birthday (Friday) he will be working on saving his life.
Mary
Tuesday, July 7, 2009
Round Two
Greetings to all!
Brian has started round two of chemo yesterday. So far this session has been going better. He is very tired but has not been as nauseated so far. He has seven more sessions of radiation left, so he will be done with all chemo on Friday and radiation on July 15th. Then he waits 6-8 weeks while he heals and then has further testing in Denver for possible surgery.
I took this week off and probably the last three days the week after to drive him to Scottsbluff for radiation and doctors appointments. He then can recuperate at home and not be on the road so much.
Brian had a big weekend planned before he knew he would need treatment. His birthday is Friday and he is scheduled to play with the Bluz Rockers Friday and Saturday at the G Spot. Friends are helping out so he can keep the commitment and hopefully not need to carry the show.
I will keep posting, thanks for all your prayers and words of encouragement!
Mary
Brian has started round two of chemo yesterday. So far this session has been going better. He is very tired but has not been as nauseated so far. He has seven more sessions of radiation left, so he will be done with all chemo on Friday and radiation on July 15th. Then he waits 6-8 weeks while he heals and then has further testing in Denver for possible surgery.
I took this week off and probably the last three days the week after to drive him to Scottsbluff for radiation and doctors appointments. He then can recuperate at home and not be on the road so much.
Brian had a big weekend planned before he knew he would need treatment. His birthday is Friday and he is scheduled to play with the Bluz Rockers Friday and Saturday at the G Spot. Friends are helping out so he can keep the commitment and hopefully not need to carry the show.
I will keep posting, thanks for all your prayers and words of encouragement!
Mary
Wednesday, July 1, 2009
July 1 jive
Still floundering through the dark forest path of treatments. Only 10 more days of radiation therapy to go. Next week I will go through 96 hours of chemotherapy. They will do some IV's on Monday and then attach a pump that I have to carry around in a little pack. Hopefully, it will go better this time around.
When I was first diagnosed, it was like mortality was slapping me in the face. Those of you that know me well, may recall that I have been able to detach my mind from body quite easily. Some call it astral travelling, or transcendental experience. I have had this gift? since I was a young boy. I would hear songs in my head and run out to the tree row to see where they were coming from. Later, as I did more soul searching through church and study of metaphysics, I understood my life's plan. I understood why I was able to catch a bird on the wing and fly with it; leaving my body behind. Not something I have done on a regular basis over the years as I realized I am needed and well loved in the real world. Since my 20's, I have dedicated my life in service to family, USPS and community. However when I am on stage or just jamming, music takes me to that place quite handily.
When first came out of the anesthesia from the endoscopy on 4/14/09; it was not a surprise or shock as the Doc explained what he had seen (Of course they photograph it all in digital living color). My soul has no fear of dying but it hit me that my body needs my mind in a serious way now. My bodily shell was saying "Come back mind, I need you". Hence, it is important to conquer this for family and friends and that I will have to deal with whatever options are available to become healed.
When I was first diagnosed, it was like mortality was slapping me in the face. Those of you that know me well, may recall that I have been able to detach my mind from body quite easily. Some call it astral travelling, or transcendental experience. I have had this gift? since I was a young boy. I would hear songs in my head and run out to the tree row to see where they were coming from. Later, as I did more soul searching through church and study of metaphysics, I understood my life's plan. I understood why I was able to catch a bird on the wing and fly with it; leaving my body behind. Not something I have done on a regular basis over the years as I realized I am needed and well loved in the real world. Since my 20's, I have dedicated my life in service to family, USPS and community. However when I am on stage or just jamming, music takes me to that place quite handily.
When first came out of the anesthesia from the endoscopy on 4/14/09; it was not a surprise or shock as the Doc explained what he had seen (Of course they photograph it all in digital living color). My soul has no fear of dying but it hit me that my body needs my mind in a serious way now. My bodily shell was saying "Come back mind, I need you". Hence, it is important to conquer this for family and friends and that I will have to deal with whatever options are available to become healed.
Thursday, June 25, 2009
Thursday 6-25-09
Yes, I have been remiss. Quiet in discussion of my condition. The fact of the matter is that I'm just returning to an energy level that I can communicate comfortably again. The prayer energy that has come my way through your love is helping immensely.
My medical team greatly expanded over the past few months with all of the doctors, nurses, and technicians helping me through this. Mary has been a wonderful case manager and is the greatest love in my life.
As you well know I have been charged with stamp stock/office accountability as a postmaster for many years. To not attend to my daily work has been a different experience; I have gone from totally public to totally private. Worrying about myself instead of the many employees/supervisors/managers/customers concerns. As Doc Walsh said: "This will be a year of reflection for you." He wasn't kidding.
My medical team greatly expanded over the past few months with all of the doctors, nurses, and technicians helping me through this. Mary has been a wonderful case manager and is the greatest love in my life.
As you well know I have been charged with stamp stock/office accountability as a postmaster for many years. To not attend to my daily work has been a different experience; I have gone from totally public to totally private. Worrying about myself instead of the many employees/supervisors/managers/customers concerns. As Doc Walsh said: "This will be a year of reflection for you." He wasn't kidding.
Monday, June 22, 2009
Brian has had a better week starting last Wednesday when he popped out of bed and cooked himself bacon and eggs. He has had no more nausea and vomiting and has gained back 4 pounds. He is able to eat most everything slowly. States he is partial to beans...yeah!
His sister Melanie is still with us. His brother James came to help us Sat. and Sun. We appreciate all they have done to make our lives easier. Brian is planning on driving himself to radiation in Scottsbluff when Melanie leaves in next day or so. Saw both doctors again today and everything is on track. Brian is planning on adding to the blog at times too.
Mary
His sister Melanie is still with us. His brother James came to help us Sat. and Sun. We appreciate all they have done to make our lives easier. Brian is planning on driving himself to radiation in Scottsbluff when Melanie leaves in next day or so. Saw both doctors again today and everything is on track. Brian is planning on adding to the blog at times too.
Mary
Monday, June 15, 2009
Monday: Second Week of Radiation
Brian was feeling a little better this morning, had started to eat some soft foods over weekend. Got to RWMC for radiation this morning and took his magic potion for esophagus and mouth irritation and he started vomiting again. We saw both Dr. Hartman (chemo radiologist) and Dr. Boggling today. Brian has unfortunately lost about 15 pounds due to chemo, radiation, and not being able to eat.
Melanie, Brian's sister is coming tonight to help drive him to Scottsbluff the rest of the week to radiation appointments so I can get back to work. If he is not feeling better the next week I will have to work half days. He has decided to let me supplement feed him through his J-tube at least until he feels stronger and can eat more.
Mary
Melanie, Brian's sister is coming tonight to help drive him to Scottsbluff the rest of the week to radiation appointments so I can get back to work. If he is not feeling better the next week I will have to work half days. He has decided to let me supplement feed him through his J-tube at least until he feels stronger and can eat more.
Mary
Saturday, June 13, 2009
The Day After
Well the first cycle of chemo is finished and it really knocked Brian a good one! He lost 12 pounds. I imagine some was because he was dehydrated related to the nausea and vomiting. The nurse gave him 2 liters of fluid after radiation yesterday and I got trained and supplies ready in case he needs to be supplemented through tube feedings. He was feeling better last night and wouldn't let me start supplement feedings yet. He was able to take nourishment orally, yeah!
He sees his chemo doctor Monday for follow up and blood work. His low immune period should hit next week or so. He is going to try to drive himself to radiation if he can next week so I can go back to work. If unable, may set radiation times so I can work half days.
Mary
He sees his chemo doctor Monday for follow up and blood work. His low immune period should hit next week or so. He is going to try to drive himself to radiation if he can next week so I can go back to work. If unable, may set radiation times so I can work half days.
Mary
Thursday, June 11, 2009
Chemo and Radiation
Its been a tough few days. Brian has had nausea and vomiting every day so far. The medicine makes him very fatigued. Its a good thing I am driving him to Scottsbluff, I know he wouldn't be able to do it himself. We worry because he has a hard time getting anything to stay down. Don't want him to loose weight. The chemo will be over Friday for this cycle, so hope he will feel better. He will continue with the radiation five days per week until finished. Thanks for all the supportive comments.
Mary
Mary
Tuesday, June 9, 2009
Making A Trail
Brian has started his chemo and radiation. Spent most of yesterday getting it. They gave him one chemo drug at chemotherapy and then when it was finished hooked him up to a pump that will deliver other drug over a 96 hour period at home. He has to wear a bag and carry it at all times... he doesn't appreciate the look! Also has many restrictions for dos and don'ts. Radiation doesn't take very long, only 20 minutes or so to zap him now that they have all coordinates figured out. He was pretty wipped after it was all done.
Today we go back for follow up with his surgeon and another radiation session. Will continue sessions everyday except Sat. and Sun. for total 28 sessions. Will keep you all posted.
Mary
Today we go back for follow up with his surgeon and another radiation session. Will continue sessions everyday except Sat. and Sun. for total 28 sessions. Will keep you all posted.
Mary
Sunday, June 7, 2009
Back Home!
Brian was much improved after IV fluids, motility drugs, and rest. Was dismissed from hospital last evening. We spent the night with Paqui, Marc and Zeyda to make sure he was truly alright. He was hot to trot in getting home this morning, so know he is feeling much better. I guess we will go to chemo/radiation session tomorrow after all.
Mary
Mary
Saturday, June 6, 2009
Returned To Hospital
Friday Brian became real sick with vomiting and increased weakness. Took him to see surgeon and then was readmitted to hospital in Scottsbluff. His bowel was asleep (Ileus) and he was dehydrated. Anything that he would take orally would come back up. He is feeling better today, but they gave him some new pain med and now is groggy again. They also started him on clear liquids again today, since there is some activity starting in bowel region. Hope it gets started soon. Doctor said they would probably postpone radiation and chemo start times for Monday until he is stronger. What a roller coaster ride!!
I am staying with Paqui, Marc, and Zeyda in Scottsbluff. Jessamyn will be coming today. She came last night with the boys and had to get more slate for house floor and return to Gordon. Boys staid with us at Paqui's. Will keep all posted on progress and when we return home.
L. Mary
I am staying with Paqui, Marc, and Zeyda in Scottsbluff. Jessamyn will be coming today. She came last night with the boys and had to get more slate for house floor and return to Gordon. Boys staid with us at Paqui's. Will keep all posted on progress and when we return home.
L. Mary
Friday, June 5, 2009
Post Surgery Report
Brian got dismissed yesterday afternoon from the hospital in Scottsbluff and we traveled home. He became very ill with increased pain and low grade temperature later that evening. I took him to the ER in Alliance after calling the surgeon on call in Scottsbluff. He had another Cat Scan to see if he had a twisted bowel, plus more blood work. All the tests turned out negative thankfully. They think he a had a bad reaction to the pain medication Vicodin that he was started on prior to leaving Scottsbluff. Plus, his digestive track was slowed by all Morphine and anesthetic he had in hospital after surgery. We returned home. This morning he felt very nauseated and finally vomited his lunch yesterday. I will start him back on clear liquids.
He is to start chemo and radiation on Monday. He will have cycles of radiation: 2 weeks for 5 days then 2 weeks off until 28 sessions are done. He is also going to have chemo 1 week with 3 hours one day then pump at home for 96 hours. This will cycle every 4 weeks for 4 cycles. I will know more how it will all turn out after he gets going on Monday.
Thanks everyone for your prayers and support!
Mary
He is to start chemo and radiation on Monday. He will have cycles of radiation: 2 weeks for 5 days then 2 weeks off until 28 sessions are done. He is also going to have chemo 1 week with 3 hours one day then pump at home for 96 hours. This will cycle every 4 weeks for 4 cycles. I will know more how it will all turn out after he gets going on Monday.
Thanks everyone for your prayers and support!
Mary
Wednesday, June 3, 2009
Surgery Day
Have spent most of yesterday and today at the hospital waiting... Its difficult knowing Brian is going through this process. He is in recovery room as I blog and will be admitted overnight for observation and care. Had his central line and small intestinal tube put in. Radiation and Chemo starts Monday 6-8-09. He will be having 28 radiation treatments, starting for 5 days for 2 weeks then rest two weeks. Chemo schedule is pending, will know more after Monday's appointment. Paqui has been with me so I don't have to wait alone. Will keep you all posted!
Mary
Mary
Tuesday, May 26, 2009
May 26, 2009
Brian met with the surgeon today to get the info on Groshong Placement for chemotherapy and an open jejuneostomy feeding tube for nutrition due to radiation of the esophagus. All this is very sobering and extremely scarey for all of us. Brian is a trooper, asking the surgeon to put the central line on right side so he could still wear his guitar strap. He will have radiation mapping done on June 2nd and surgery for central line and tube placement on June 3rd. Will keep all posted of any developments.
He is still playing this weekend at two gigs with the Haywaddies.
Happy Trails
He is still playing this weekend at two gigs with the Haywaddies.
Happy Trails
Monday, May 25, 2009
05/25/09
Enjoying memorial day with the family. Tomorrow is the first appointment with surgeon about chemo ports. The doctor has decided to prolong the surgery until after chemo and radiation therapy to shrink the tumor and to reduce the cancer in his lymph node. We will let everyone know more when he starts the process. We appreciate all the love and support! Jessamyn is home safe from London and Paris. Paqui is here with baby Zeyda. We will keep you posted.
Happy Memorial Day!
Happy Memorial Day!
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